A fairytale blue light shines on Halfweg after sunset on May 12. SugarCity lights up blue to call attention to ME. This makes the Sugar Silos part of a worldwide chain of blue buildings and objects; from the Niagara Falls to the Erasmus Bridge.
17 million ME patients globally miss their lives, an estimated number because many patients do not even get a diagnosis of ME or have to wait years for clarity. This is because many doctors and practitioners miss adequate knowledge about Myalgic Encephalomyelitis.
World ME day
A group of ME patients – also known from the #MillionsMissing campaigns – therefore asks for recognition, better training of doctors and more biomedical research on 12 May (World ME Day). With the hope that a healing treatment can be discovered or a method can be developed that improves the quality of life of ME patients. ME is currently one of the diseases with the lowest biomedical research budgets.
#EnlightenME
The campaign is being conducted under the title #VerlichtME (#EnlightenME). SugarCity is also part of the global chain of blue buildings and objects on 12 May. Luigi Prins, director Cobraspen Group, developer of the SugarCity site; ‘We are happy to contribute to this initiative to let the iconic Silo’s shine blue to demand more attention for ME’. #MEAction.
Why blue? Blue is the color of the ME Awareness ribbon. A call for donation has been linked to the ME initiative. More information can be found on the Facebook pages VerlichtME and MillionsMissingHolland.